Living with idiopathic normal pressure hydrocephalus: a grounded theory study

Idiopathic Normal Pressure Hydrocephalus (iNPH) is a complex and multifaceted disorder of cerebrospinal fluid (CSF) circulation. This paper presents the findings of grounded theory research undertaken to explore the health and illness experiences of individuals diagnosed with iNPH. Purposive and theoretical sampling was used to recruit 26 participants who all had a confirmed diagnosis of iNPH for at least 6 months before data collection. Data was collected through in-depth semi-structured recorded interviews (n=15) and written personal biographies (n=11). Data was analysed using constant comparison and the method suggested by Glaser (1992). Four themes emerged from the date: hope; frustration; isolation and life-long illness. These themes are used to explore and explain the experiences of those who live with iNPH. Greater understanding of this experience will help health care professionals to provide meaningful and effective care for patients and their families.